Hi All! It has been almost a year since I've posted and over a year since my diagnosis with CIDP. You know, it's not that I don't have anything to say about CIDP, it's just that I don't want to bore anyone with it. Nobody wants to hear(read) about someone's daily trials all the time...that would just get depressing (for you AND me).
So, I took some time off. In that time, though, I've had some treatments that have done well with me and others that went over like broccoli at a kid's birthday party. I still get the IVIG every week. I want to thank anyone that donates plasma, as that is where my medicine comes from. It is very expensive, so I'm definitely thankful for insurance, as well.
One treatment that my neurologist is trying is the use of immune - suppressants. For those that don't know, those drugs knock down your immune system. In my case, it is to prevent my immune system from attacking, well...me. The first drug he tried was one called Imuran. I did feel better for a while, but it started making me really tired because it decreased my hemoglobin (the part of the blood that carries oxygen). Since that didn't work, he's trying another known as Cellcept. So far, so good. He just upped the dose, so we'll see if my body can hack it! LOL!
Something fortunate happened to me that many people may have seen as a bad thing... I lost my job. It was very difficult at first, as I wasn't sure what I was going to do with myself! But, it has given me time to heal without all the stress I was under before. As you probably know, stress is VERY bad for the nerves! I'll be back to work, soon, but hopefully not as much stress! :)
Wow. It has really helped me to be able to blog like this to all of you. I guess I didn't realize how therapeutic it is for me to do this. I guess the Lord has made a way for me to get things off my chest and I just need to use it. He has been far better to me, lately, than I have been to Him. I don't deserve His blessings, but I thank Him for them, all the same.
I hope this finds all of you happy and healthy!
- Aaron
